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Thursday, September 26, 2013

The Eiffel Tower

I had such a great time in Maine hanging out with friends and family!

One of the days we were there, Steve Martin decided to go out on his own (see pictures below.) I think he just needed a moment.

From Maine, we ventured to Brigham and Women's Hospital, in Boston, for a visit with the Great Dr. Landzberg and his team. We had a fantastic visit which left me both comforted and much more informed.

Dr. Landzberg made us aware of a few findings on my CT scans that are "not classic of PVOD." This, of course, doesn't confirm that I don't have PVOD, but at least it's a step in the right direction. The only way to confirm it is with an open lung biopsy, which I'm not well enough to undergo at this time. My cousin decided that PVOD stands for "Piss off you Very Odd Disease." I think she's right on with that one! :-)

Yesterday morning I had to have a tube with some sort of camera inserted into my stomach through my nose (what a lovely image it was.) It went in my nose, down my throat and into my stomach and I had to leave it in for 24 hours! Ahhh! The tube came out this morning! What joy! I've never appreciated not having a tube down my throat as much as I do now.

Its purpose is to monitor reflux and any sort of action that goes on in the digestive system. (This test is part of the transplant evaluation.) I thought I was done but there was one more. What a welcome back to NY!!! I'm ready to go back to Maine. The good news is that, as long as I continue to feel well enough,  I can take a break from doctors and focus on music. Amen!!! Looking forward to sharing both my album and all the new music I've written with all of you.

More to come :-)


Steve Martin thought he spotted the Eiffel Tower.

 Then he stopped for some Seafood
 Then he took a moment to enjoy the view
 Then he got hungry and stopped for brunch
 Then he decided to watch the sun as it set
Then he decided to make an evening of it and went to listen to some Jazz
Other Happy Moments:


  1. I'LL BE PRAYING FOR YOU CHLOE! please keep warm it's getting chilly here in nyc! :) LOOKING FORWARD TO YOUR MUSIC<3

  2. Very encouraging. Thanks for keeping us posted and not accepting the first diagnosis.

    Doctors tend to bury their mistakes.

  3. I hope you are doing well. I still laugh about my good friend stepping onto your stage at SXSW in 2010, so he could politely (drunkenly) ask for you to sing me Happy Birthday. I am following your journey and wishing for the very best.