Search This Blog

Saturday, September 7, 2013

Back On Stage!!!

I have officially completed all of the testing for the transplant evaluation. The next step is for the doctors to review my case and test results to see whether or not I qualify for the surgery. At that point I will have to make a decision. Ahhh!!!

In the meantime, Hunter and I are heading to Boston to visit a doctor for a second opinion and then heading to Maine for a mini vacation so that we can take a breather from all of the craziness.

We're also communicating with doctors in Japan, Hong Kong, Singapore and at Vanderbilt University who have specifically dealt with PVOD. Our goal is to find out as much as possible about this very rare lung disease in the hopes that something will lead us to believe that I don't have it. And if I do have it, then our hope it to gather as much information as possible.

In the midst of all the insanity, I've decided that it's time to perform again!!! Thank you, Annette Insdorf for the inspiration!

This time, I shall be performing with my sidekick, Steve Martin. He so enjoyed getting all dressed up for the opening of Lovelace, (he wore his favorite tie) so he has asked that I dress him up again for the show. I will, of course, honor his request. :-)

I'm going to be playing on November 7th, at the Gala for Pulmonary Hypertension, celebrating the life of Dr. Robyn Barst. I'm so looking forward to being back on stage and to sharing all the new music I've been writing. This experience, scary as it may be, has been a HUGE musical inspiration!

I'll send out a newsletter with details about the show soon. If you're not signed up for my newsletter and would like to be, please leave your email here:

Thank you again for being with me on my journey! More to come...



  1. "Back on Stage"! This IS wonderful! I know how you love making music - I can hear it in every song you do. And though my experience is limited, I do know that the best part of creating music is doing it "LIVE" "on stage!" The audience response - the 'connection' is a brilliant feeling! Enjoy Boston, and Maine. It's very smart, learning as much as you can - from all around the world. Relax and enjoy these vacation days, and have a FABULOUS time preparing for the show! ~ Please keep us posted!